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Dyspraxia
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Posted by: Val. Reply: Helen. Reply: Louise.
Val: I am new here and finally my 7 year old son has been diagnosed with dyspraxia and aspects of ADHD and Aspergers. Despite this I have no proffessional help and none from my family. I am hoping the school may be able to get some help for him soon. I feel very alone and desperate sometimes and it would be wonderful to talk to someone else who understands what it is like. His real father is dead and I have just divorced his step father due to alcoholism and domestic violence. Val
Helen: Hi Val,
My 7 year old son has recently been diagnosed with Developmental Delay Syndrome, characterised by Dyspraxia, ADD & secondary Dyslexia at the Tinsley House Clinic. I am divorced from his sometimes violent father & he has had no contact for 3 years. I have no family close by & although they care enormously, they don't see they day to day struggles - so if anyone understands I do :0) You never mentioned finances, so forgive me if I am talking out of turn, but, your son may be entitled to disability living allowance, I'm sure the helpline can help point you in the right direction. Also, the school can seem to take a really long time getting their act together, so if you have no joy with the class teacher, contact the SENco (Special Educational Needs Co-Ordinator) & they should re-assure you & give you an indication of timescales.
Last of all, but most important of all YOU...if your self esteem & confidence has taken a knock (as can happen in divorce DV or not) & you are feeling a little more desperate that you feel comfortable with, please have a chat with your GP...remember...(it should be our bloomin mantra actually) who will look after your little one if you get poorly!Best of luck.
Louise: Dear Val
I have a 6 year old son who was diagnosed with learning needs about 3 years ago. He still does not have a diagnosis, but his needs seem to fall into the category of dyspraxia and autistic spectrum (and he has a diagnosis of borderline ADHD and has a Statement of Educational Needs). I work in school with special needs children and know how hard it can be to get help. As your son has a diagnosis the school should apply for a Statement of Educational Need (if they haven't already). This is a lengthy process but stick with it and don't accept the first decision of you don't like it. Use whatever support you are offered (this is the best advice). Your school should have a SENCo who will know the people to talk to (eg. educational psychologist who is by far the most important person in getting your son educational help). Call your local Welfare Rights group about financial help. Lastly, it is hard for any parent to cope with the demands of SE children, no matter how much you love them and without support, doubly difficult. I was in a similar situation. Don't give up, you are not alone. Eventually you will meet people who understand, it just takes time. I hope this has been of some use and comfort to you. Best wishes Louise.
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