Lobbying for change

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Lobbying for change

Sophie's battle - from Together Magazine, issue 4

For much of the 13 years since Rachel was born, Sophie has fought for more – and equitable – childcare for severely disabled children, lobbying both in her local borough of Kingston upon Thames and at a national level.

For the past two years she has sat on Kingston’s Special Educational Needs (SEN) sub-group of the Early Years Development and Childcare Partnership (EYDCP), set up as part of the Government’s National Childcare Strategy, and has looked into provision across London.

What has driven her, she says, is sheer rage – rage that her child should be deprived of having as many opportunities for the social life that childcare clubs can provide as able-bodied children can have, and rage that the lack of childcare makes it extremely difficult for mothers of disabled children to work full time.

‘The fact is, there is no childcare for children with severe disabilities that is comparable to mainstream care’, she says. ‘If your child has a disability such that they would need extra support in a mainstream club, there is nowhere that I have found in any of the London boroughs where you could get enough support to cover yourself to work full time.’

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